January 2017

Resources > Blog > January 2017

A Step Backward: HRSA’s Elimination of the ACHDNC Threatens Progress on Newborn Screening

Author: NCMVF Board of Directors
Posted: 4/25/2025
Category: Advocacy, Awareness
The National CMV Foundation is deeply concerned by HRSA’s recent decision to dissolve the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC)—a cornerstone of equitable, evidence-based newborn screening for over 20 years. Without this federal oversight, there's now no national process to evaluate and recommend new conditions—including congenital cytomegalovirus (CMV), the most common infectious cause of birth defects and developmental disabilities in the U.S.

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Remembering Aedan

Posted: 1/30/2017
Category: Parent Perspective
The tremendous loss that we experience -- as parents and as a community -- when a child sucumbs to the effects of congenital CMV cannot by overstated. We see ourselves in each parent's experience and we extend our love and hope to all children born with CMV, much like we would our own. 

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Pregnant and diagnosed with CMV?

Posted: 1/15/2017
Category: Awareness, Clinical, Recommendations
​If you have just recently been diagnosed with CMV, it can be an extremely confusing, difficult time--we've been there. Just trying to understand what the doctors are telling you can leave you feeling lost and alone sometimes. National CMV is here to help guide you as you begin this journey, providing information and resources to better understand what comes next.

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